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A Parents’ Guide to PANDAS, PANS, and Related Neuroimmune Disorders

A Parents’ Guide to PANDAS, PANS, and Related Neuroimmune Disorders

Information, Support, and Advice

Patricia Rice Doran, Christine L. Amabile, Tiffany Tumminaro, Heather Korbmacher, and Diana Pohlman

Quick Overview

Encephalitic autoimmune disorders, including PANDAS and PANS, cause children to display a wide range of symptoms including OCD, anxiety and tics. This helpful guide provides information for families on diagnosis and medical interventions, alongside practical strategies for support that families can carry out at home.
2019, Paperback / softback, 9.02in x 5.98in / 229mm x 152mm, 160pp
ISBN: 9781785927683

Availability: In stock

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Description

Having a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings.

The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.

Reviews

'A Parent's guide to PANDAS, PANS and Related Neuroimmune Disorders is dramatic as it is revealing written by those on the front-line of these debilitating illnesses. This highly-readable guide forces us rethink our definitions of mental illness. Above all, this guide offers coping strategies, hope and optimism the general medical community is unable to give.'
- Tim Sorel, Professor, University of Florida, Producer/Director of My Kid is Not Crazy: a search for hope in the face of misdiagnosis

'A Parents' Guide to PANDAS, PANS and Related Neuroimmune Disorders will be a dog-eared, high-lighted, bookmarked constant companion for parents of children with PANS! It packs practical recommendations for parents from parents, with illustrative case vignettes, up-to-date information, and tools for navigating the journey to healing. It will help parents understand these disorders, work collaboratively with medical and educational professionals and care for their children and themselves. I will recommend it to my patients' families and their medical and educational care teams.'
- Margo Thienemann MD, Director of PANS Program Psychiatry, Clinical Professor of Psychiatry, Stanford University School of Medicine