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Autism, AS and related conditions newsletter - August 2009. Go to the newsletter archive.

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JKP Autism Newsletter
JKP logo Jessica Kingsley Publishers

Autism, Asperger Syndrome and related conditions newsletter

Welcome to the JKP Autism newsletter, a monthly update of relevant news and events, entertaining interviews and articles.

You can find details on how to contribute or give feedback, as well as opt out of these emails, further down the newsletter.


Exclusive Interview with Carol Hagland

Carol Hagland is the author of Getting to Grips with Asperger Syndrome and co-author of Working with Adults with Asperger Syndrome, both published by Jessica Kingsley Publishers. Carol Hagland worked as a chartered clinical psychologist in the NHS for over thirty years, the last ten years being in the field of learning disabilities.


What first interested you in Asperger Syndrome?

I first became interested in Asperger's syndrome over twenty-five years ago, after meeting someone in an adult mental health setting, who had received this diagnosis. I was intrigued by his oddness and the fact that he did not seem to be mentally ill in the accepted sense. Nevertheless, he clearly had a number of problems in coping with life, and I began to read everything I could about the condition, and what was known about it at the time.

Your new books are specifically about adults with Asperger’s syndrome. Why have you chosen this focus?

Although life for children with AS is still not easy, the condition is now much more readily recognised and diagnosed. Treatment approaches and support are more readily available than they were. In contrast, many adults have never received a diagnosis, or have not been diagnosed until well into their adult life. These folks have often struggled for years, not knowing why they were different, and not being able to make sense of themselves or their difficulties. Families have often become frustrated and despairing, as have care staff in residential settings where the person ends up in such a situation.

Adults with AS seem so often to be regarded as a frustrating puzzle. I have spent much of the last ten years or so teaching and training people to understand and manage the problems that AS can present, and it seemed that this was an area where lots of people, regardless of their level of training, would welcome some help. My co-author, Zillah Webb, came from a setting where she had worked extensively with adults with autism, as well as those with Aspergers, and we both felt that a book that focussed on the particular problems of adults with AS was needed.

What sort of differences are there between experiences of adults and children with Asperger’s syndrome?

When children are diagnosed with AS relatively early in life, there are then opportunities to set up systems around them which make it easier for them to cope with the demands of society, and to understand why they react as they do. Both they and their families or carers are more likely to be able to capitalise on their strengths and compensate for their weaknesses. While the situation for many children with AS is far from perfect, it is still far better than for many adults, who may have gone through life meeting problem after problem, being bullied, losing friends, partners and jobs, and even getting into serious trouble with the law, without fully understanding what they have done wrong. While they often have a sense of being different, they have no model for making sense of themselves and how they respond to the world around them, and this adds to their difficulties, frequently resulting in mental health problems on top of their other challenges. These adults with AS tend to come to mental health services when they are in crisis, and this may also be the point at which they finally receive a diagnosis.

Who or what most inspires you?

I think what inspires me most is a puzzle that I can't make sense of, especially if it is people-related. I like to understand what makes people tick. I guess that is why I became a psychologist!

What do you enjoy doing in your spare time?

Gardening and dancing.

Copyright © Jessica Kingsley Publishers 2009

Getting to Grips with Asperger Syndrome:
Understanding Adults on the Autism Spectrum

Getting to Grips with Asperger Syndrome: Understanding Adults on the Autism Spectrum is released in September and is available for pre-order. See the below link for more details.

More details of the book



Working with Adults with Asperger Syndrome: A Practical Toolkit

Working with Adults with Asperger Syndrome: A Practical Toolkit was published this month and is available to buy. See the below link for more details.

More details of the book




JKP News

JKP titles have been used by Max Mayer as a reference for his new film 'Adam'. JKP titles How to Find Work that Works for People with Asperger Syndrome by Gail Hawkins and Pretending to be Normal by Liane Holliday Willey have even featured in the new film!

The Daily Mail has published an article about the film 'Adam', and talks about JKP author Barbara Jacobs's book Loving Mr Spock, as well as JKP author Rudi Simone and her book 22 Things a Woman Must Know: If She Loves a Man with Asperger's Syndrome.

The New York Times has interviewed JKP author Rudi Simone for it's article on the film 'Adam'. The article also mentions the JKP titles 22 Things a Woman Must Know: If She Loves a Man With Asperger’s Syndrome by Rudy Simone; Pretending to be Normal by Liane Holliday Willey; The Love-Shy Survival Guide by Talmer Shockley and The Imprinted Brain by Christopher Badcock.

Autism in the news - some of the articles in the media this month

BBC News have published an article about how problems processing visual information may stop those with autism interpreting body language.

BBC News have published a piece on Louis Walsh defending the decision to allow a man with Asperger's Syndrowe to take part in the X-Factor.

The NAS have published a piece about the Governments Green Paper on social care reform and how it could affect those with Autism.


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Email us with your news, events or feedback at news@jkp.com or visit our website for more on our books.

Please feel free to forward this message on to anyone who might be interested, or want to join our mailing list.


This month's author feature by JKP author Sandy Row

Sandy Row


Since Sandy Row wrote her bestseller Surviving the Special Educational Needs System: How to be a 'Velvet Bulldozer' much has changed for her family. Her children have now grown up and left the education system but rather than putting her feet up Sandy has found that negotiating the “adult special needs system” just as challenging as the education system. As she says “It hasn’t been all bad, but I’ve certainly grown more white hairs!!!”

‘Well, I’m still bulldozing along, although my ‘velvet’ is getting threadbare in places, as I now navigate the ‘adult special needs system’. Yes, sorry to tell you but the roller coaster ride does continue and at present the system is a bit of a mess. Legislation seen creeping in lately may impact on all my adult ‘children’.

One example is that policy over the last few years has been to shut placements that have multiple-occupancy, and to push vulnerable adults into ‘supported tenancies’. I am on record somewhere as saying ‘over my dead body’ to the idea of a supported tenancy, but I have to say that we eventually found a wonderful provider who really does support two of our children very well, under difficult circumstances and is doing her best, along with us, to enable them to live their lives to the fullest, taking into account their problems.

Unfortunately, I have just been told that whilst our children are exempt from Council Tax, because they are on various disability benefits, she as the landlord, will in future be liable to pay this tax. This could have serious implications for our children. Either their landlords will have to ‘swallow’ this increase in costs which could mean that providers risk going out of business (leading to even fewer suitable placements) or they will have to recover this from their tenants. Whilst this lady is certainly not in it for the money she faces making a loss of £10,000 this year! The only way forward for her and other providers will surely be to pass this increase on to their clients – our children, so at the end of the day they will end up paying Council Tax out of their fixed income benefits.

Copyright © Jessica Kingsley Publishers 2009

Surviving the Special Educational Needs System
How to be a 'Velvet Bulldozer'

Sandy Row is the author of Surviving the Special Educational Needs System How to be a 'Velvet Bulldozer'.

More details of the book


Content links

JKP Autism books

Getting to Grips with Asperger Syndrome

Getting to Grips with Asperger Syndrome:
Understanding Adults on the Autism Spectrum
Carol Hagland

Click for more details


Working with Adults with Asperger Syndrome

Working with Adults with Asperger Syndrome
A Practical Toolkit
Carol Hagland and Zillah Webb


How to Find Work that Works for People with Asperger Syndrome

How to Find Work that Works for People with Asperger Syndrome
The Ultimate Guide for Getting People with Asperger Syndrome into the Workplace (and keeping them there!)
Gail Hawkins

Click for more details


Pretending to be Normal: Living with Asperger's Syndrome

Pretending to be Normal
Living with Asperger's Syndrome
Liane Holliday Willey

Click for more details


22 Things a Woman Must Know

22 Things a Woman Must Know:
If She Loves a Man with Asperger's Syndrome
Rudy Simone

Click for more details


Can the World Afford Autistic Spectrum Disorder?

Can the World Afford Autistic Spectrum Disorder?
Nonverbal Communication, Asperger Syndrome and the Interbrain
Digby Tantam

Click for more details


The Complete Guide to Asperger's Syndrome

The Complete Guide to Asperger's Syndrome:
Tony Attwood

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First Steps in Intervention with Your Child with Autism

First Steps in Intervention with Your Child with Autism:
Frameworks for Communication
Phil Christie, Elizabeth Newson, Wendy Prevezer and Susie Chandler
Illustrated by Pamela Venus

Click for more details


The Imprinted Brain

The Imprinted Brain:
How Genes Set the Balance Between Autism and Psychosis
Christopher Badcock

Click for more details


Authentic Dialogue with Persons who are Developmentally Disabled

Authentic Dialogue with Persons who are Developmentally Disabled:
Sad Without Tears
Jennifer Hill

Click for more details


Asperger Syndrome and Anxiety

Asperger Syndrome and Anxiety:
A Guide to Successful Stress Management
Nick Dubin
Foreword by Valerie Gaus

Click for more details


Coach Yourself Through the Autism Spectrum

Coach Yourself Through the Autism Spectrum
Ruth Knott Schroeder
Foreword by Linda Miller

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Useful Dates for your Calendar

What Where When Link
Autism Spectrum Disorder This workshop will be hosted by: Tony Attwood Shepparton, Australia 5th September 2009 9.30am Conference info
CHADD Cleveland, Ohio 9th-10th September 2009 Conference info
Growing Up with an Autistic Spectrum Disorder Conference University of Surrey, Guildford Saturday 3rd October, 10.00am - 4.30pm Conference info
Whole Health Learning for Autism and Related Disorders, International Conference 2009 LVS Ascot, London Road, Ascot, Berkshire Weekend Conference: 23rd, 24th, 25th October 2009 Conference info
Autism Awareness Centre and the Linwood School Conference Bournemouth, UK 23rd-24th November 2009 Conference info

Email us with your news, events or feedback at news@jkp.com or visit our website for more on our books.

Please feel free to forward this message on to anyone who might be interested, or want to join our mailing list.