PDA by PDAers

Fittingly, Sally Cat’s first ever blog piece is about her first book, PDA by PDAers, which is out now. Here, she describes how the online support and discussion group that fuelled the book came about and flourished, despite her PDA sometimes getting in the way. 

I’ve been thinking about writing a blog for a while.  I’m good with words, have opinions and an understanding of PDA, but my PDA (pathological demand avoidance) has actually scuppered me into a kind of helpless paralysis. Demand Avoidance has told me that blog writing is “too difficult”.  It says, “you’ll get lost and waffle on irrelevantly”; “people will be bored”; “it would take up too much time” and this negative brush with which my subliminal demand avoidance has painted the concept of blog writing has left me feeling terrified of even trying.  However, JKP have invited me to write a blog to coincide with the launch of my book, PDA by PDAers, and (after much avoiding and, in facing it, feeling physically sick) here goes!PDA

PDA to me is a wondrous, many faceted beast.  I equate it to a tiger in the introduction to PDA by PDAers where I say that thinking of PDA as merely comprising Demand Avoidance is akin to thinking of tigers as comprising only stripes.  We PDAers, as I have come to know us, have metaphorical teeth, claws and bodies finely honed for leaping too. We experience extreme, hard-wired anxiety, which we tend to feel compelled to mask (for, I believe, equally hard-wired reasons).  We fight injustice and fearlessly defend victimised people and animals. We have wonderful imaginations and breadth of lateral thinking. We have our own minds and think out our own, well-considered codes of ethics. We are vulnerable though to social pressures and need personal control and quiet space in order to thrive.  There is a myth-conception amongst the few who are aware of PDA that we feel no shame during meltdown, but this is untrue. Melting down is involuntary and we observe ourselves in mute horror then, once our meltdowns are over, tend to hide our shame behind involuntary masks. Continue reading

PDA Action Day – Positive PDA

PDA day

The PDA Society are encouraging everyone to mark today, 15th May, as PDA Day! The theme is ‘Positive PDA’ and in keeping with that, they’ll be focusing on success stories, recognising all those who are making great contributions to the PDA world, highlighting some of the positives of living with PDA and showcasing the accomplishments of adult PDAers. As well as this, you’re all invited to get involved by fundraising, sharing stories, or joining their peaceful protest.

We’re joining in by sharing some of the resources we’ve published over the years, and a sneak peek at what’s coming up throughout 2018. PDA has been a big focus for JKP this year, and will continue to be as more is learned and understood about the diagnosis, and more stories are shared. So, take a look through our old, new, and upcoming books on PDA.  Continue reading

Looking after the Mental Health of Girls with Autism

A Guide to Mental Health Issues in Girls and Young Women on the Autism Spectrum: Diagnosis, Intervention and Family Support is the first book to look specifically at how mental health issues relate to girls and young women with autism, covering theory, research and tailored interventions for support.

In this extract, taken from Chapter 6 on Anxiety and Depression, author Dr Judy Eaton explores the results of a number of studies into anxious behaviour in girls and young women on the autistic spectrum. 

Evidence suggests that an estimated 40 per cent of individuals on the autism spectrum will suffer from high levels of anxiety (Van Steensel, Bögels and Perrin 2011). Clinical experience would suggest that this figure is likely to be higher, particularly amongst those with the pathological (or extreme) demand avoidance profile. In an earlier version of the DSM, DSM-III (APA 1980), ‘sudden excessive anxiety’ and ‘unexplained panic attacks’ were included amongst the core criteria for a diagnosis of autism. However, subsequent versions of the DSM (IV and V) do not include this. The reason for this is not entirely clear. Hallett et al. (2013) cite the meta-analysis by White et al. (2009) which found that between 11 per cent and 84 per cent of children with a diagnosis of autism display anxiety. Of the 31 studies analysed 30 per cent were diagnosed with specific phobias, 17 per cent had obsessive compulsive disorder, 17 per cent had social anxiety and 15 per cent reported features of ‘generalised’ anxiety. Their results suggested that children with autism were twice as likely to develop anxiety disorders compared with their neuro-typical peers. High levels of anxiety have a negative impact upon education, social relationships and social participation and on other members of the immediate family group (Reaven 2011). There is also an increased likelihood that these anxiety disorders will persist into adulthood.

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