How can we attune to the spiritual and religious needs of young people in hospice contexts?

Reverend Kathryn Darby is the Chaplain at Birmingham Children’s Hospital and co-author with Paul Nash and Sally Nash of Spiritual Care with Sick Children and Young People.

In this blog, she explores the roles chaplains play for sick children and young people who are staying in hospices or hospitals. 

How can we attune to the spiritual and religious needs of children and young people in a hospital or hospice context? This question was recently sharpened for me in my role as a chaplain at the Birmingham Children’s Hospital when in conversation with a young person receiving treatment for mental health. He said words to the effect of, “You just get into that headspace where you don’t matter, you don’t deserve anything”. The need for all of us to attend to our mental health has been highlighted in British society recently – e.g. the grieving and recovery process of Princes William and Harry in relation to their mother’s death and debate within the political arena about mental health provisionNo one is invulnerable to the stresses and bruising of life that can result from illness, bereavement, or loss.  At times, mental health issues, such as anxiety, low mood, or eating disorders can escalate for young people leading to hospital care. Young people and their families experience distress, suffering and heartache but can find the support that they need for recovery and growth. Continue reading

Rethinking hospice chaplaincy: A spiritually motivated response to raw human need

Reverend Dr Steve Nolan is the chaplain at Princess Alice Hospice in Esher and the author of ‘Spiritual Care at the End of Life.

Here, he explores new ways of understanding the roles of hospice chaplains. 

I never met Dame Cicely Saunders. The nearest I came to her was when I visited the chaplain at St Christopher’s, the south London hospice she established. My tour of the hospice had reached the old chapel, and as I chatted with the chaplain, I caught a glimpse of her as she walked slowly passed the chapel door.

Whether Dame Cicely should be considered ‘the founder’ of modern hospice care could be debated. But her dynamism and drive had a significant hand in shaping the direction and values of the nascent movement. Yet she was not the only dynamic woman to have influenced the history of hospice care.

In 1843, Mme Jeanne Garnier opened a home for the dying in Lyon. In Dublin, Sister Mary Augustine inspired first Our Lady’s Hospice for the Dying, which opened in 1879, then further hospices in Australia and Great Britain. And in New York, Mother Alphonsa established St Rose’s Home in 1899. Working independently of each other, these women shared not only a common purpose but a motivation that was inspired by their spiritual beliefs.

Spirituality was clearly one of the key motivators that drove Dame Cicely. In the late 1940s, she converted from agnosticism to a deep evangelical Christian faith, which transformed the way she understood her work. Caring for the sick had always been a priority; following her conversion it became a religious calling.

Continue reading

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“Why Bother? Does it Even Matter?” Read an exclusive extract from Treating Body and Soul

In Peter Wells’ new book, Treating Body and Soul, various healthcare professionals reveal how they meet patients’ spiritual needs in medical settings.

Patients who are facing illness and uncertainty often find themselves reflecting on the bigger questions in life, and the core beliefs or principles they live by. These convictions, religious or otherwise, are integral to a patient’s identity, and consequently to their most fundamental emotional and spiritual needs. Perceptive clinicians have proved that, by recognising and working with their patients’ spiritual requirements, they have been able to significantly improve their patients’ experience in the medical setting.

In this extract, Peter Wells questions why we need to address the needs of the body and the soul in healthcare settings and why this shouldn’t just be the role of the hospital chaplain. He also explains how best to use this book.

Read the exclusive extract from Peter Wells here

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Chaplains are worthwhile because….

Karen Murphy has worked in hospice chaplaincy for twenty years and has represented chaplaincy at national and international level. She is President of the Association of Hospice and Palliative Care Chaplains (AHPCC). Here, she argues the case for hospice chaplains. 

The Association of Hospice and Palliative Chaplains held our annual conference in May and considered the following statement: ‘chaplains are worth having because….’ As a group of skilled, trained and experienced chaplains, we had no problem in accounting for our role and purpose in a palliative care setting. There is a view, however, that in these secular days, the role of the chaplain is no longer valid or necessary. The daily conversations that chaplains share with patients and families soon render this argument redundant.

A patient shared with me recently that she had never had a religious faith, although she often thought it would be of value. Her long held view was ‘when you are gone, you are gone’. Now, facing her mortality having being diagnosed with terminal cancer, her thinking has shifted and for the first time, she is considering her life against an absence of faith. Our conversations are not concerned with my attempts to convert her to my way of thinking or persuade her to find a faith or belief, but to support her in this deeply challenging time. I can enable her to think through her questions and listen. At this point the value of chaplaincy becomes clearer as we offer spiritual listening, which is very different to counselling or social work listening. Chaplains have the capacity to instigate and support conversations that get to the root of someone’s spiritual distress and need. We are not afraid to ask the difficult questions about life’s meaning and purpose, and in my experience, patients seek out those with a belief in order to make sense of the spiritual disturbance and trauma experienced. A patient’s relative expressed this very clearly in a recent conversation, saying: ‘My mother, in her last weeks of life, wasn’t concerned with whether or not the chemotherapy had been successful, or what drugs she would need to be pain free. She trusted the doctors for this. What she valued was the time of the chaplain to help her think about life’s meaning and how to live and die well’.

There is a view that chaplaincy services are a waste of time and resources in a stretched and under –funded health service. The rationale for this view suggests that if patients identify spiritual need, they are likely to have religious faith, therefore will have the support of a local faith community. This view ignores the fact that patients faced with a terminal prognosis, while describing themselves as non-religious, will experience spiritual distress which is unfamiliar and frightening. Chaplains are an essential tool of our health care services which provide distinctive and relevant care for patients who are asking the big questions of life which have never been asked before. The positive impact of chaplaincy based on evidence and research is already emerging, with projects demonstrating the need for fewer GP appointments, reduced medication and a greater sense of well-being to live in the face of impending death. This body of research is growing and will offer to those cynical of chaplaincy, a quantitative and qualitative foundation for the chaplain’s continuing contribution to palliative care services.

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Author Q&A with Dr Monika Renz

Dr Monika Renz shares her perspective on optimal palliative care and talks to us about her most recently published title, Hope and Grace.

Renz_Hope-and-Grace_978-1-78592-030-1_colourjpg-print

Could you tell us a bit about your background? Where you grew up and whether there were any early influences in your decision to enter the palliative care field?

I grew up in Zurich. My father was a business leader; my mother was a psychologist. Since childhood, I have been interested in the human condition, particularly health and spirituality. I was first influenced by my father’s focus on efficiency, and as a psychotherapist, I began looking for efficient therapy methods.

A second early influence was music: My mother told me that I had begun singing before speaking! Since I was 5 years old, my hobby has been piano improvisation. Without reading notes, I played whatever I heard and as a child discovered the healing effect of music. When I was a teenager, research on intrauterine hearing had just come to the fore. I was fascinated and became interested
in music therapy.

At the University of Zurich, I studied educational psychology, psychopathology, and ethnomusicology. The deepest influences on my therapeutic work with dying patients came from several accidents and longer periods of personal illness. As a patient, I experienced what I later called a transformation of perception. I discovered two different states of being: In one, I suffered great pain, and in the other state, I had none. In the one state, I was present and in control, and in the other painless state, I was somehow far away from time and space but very clear. I looked deeper into this phenomenon when writing my doctoral dissertation on primordial trust and primordial fear under Professor Heinz Stefan Herzka. Years later, I studied theology to better understand patients’ spiritual distress. My theologic dissertation dealt with redemption from early behavioural imprinting. Continue reading