Julia Segal, author of The Trouble with Illness, has written an article for Open Door, the MS Trust Newsletter on ways to help your partner if they have MS.
Relationships are full of ups and downs – it’s a fact of life. But when your partner has a long-term health condition like MS, there may be some extra bumps in the road for you both to navigate. Here are a few ways you can support your loved one along the way.
That is according to Nathalie Slosse, author of Big Tree is Sick, who tells the story of how the book came to be, as well as laying out her case for complete honesty as the best way to engage with children when helping them to understand serious illness.
In surveys on what values we consider important, honesty is always highly rated, usually even as the most important quality. However, when it comes to honestly confiding something serious to our children, we often want to spare them the grief that the harsh truth can bring. It is a dilemma I struggled with when I was treated for breast cancer, and it’s why I want to provide a resource to others in the same situation today.
Sometimes people ask me “Did breast cancer change your way of life?” I wish I could reply that this was not the case; it’s true that prior to my diagnosis I followed my heart when it came to important life choices. But if I’m honest, I must admit that without the painful episode in 2007, I would not be doing what I do now. The battle I had with breast cancer as a mum of a two year old boy helped me discover that I can help people find happiness in difficult circumstances. In 2010 I founded the association Talismanneke to further explore that path.
But let’s start at the beginning.
Meet Maria – a woman with Multiple Sclerosis (MS). Maria tells the story of her family holiday which was interrupted when she began to feel dizzy, exhausted and weak. She explains how this led to her diagnosis and describes what MS is, how it affects her daily life and what others can do to help. Her story is taken from Can I tell you about Multiple Sclerosis? and is an ideal introduction to MS for children aged 7 +, as well as older readers. It will help family, friends and carers to better understand and explain MS and is an excellent starting point for group discussions.
Click here to download the extract
Can I tell you about Multiple Sclerosis? is part of the Can I tell you about…? series which offers simple introductions to a range of limiting conditions and other issues that affect our lives. Friendly characters invite readers to learn about their experiences, the challenges they face and how they would like to be helped and supported. These books serve as excellent starting points for family and classroom discussions.
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