Raelene Dundon is a parent, a psychologist and the author of Talking with Your Child about Their Autism Diagnosis: A Guide for Parents. In this piece, Raelene tells her personal story of how she came to write this book, and what she hopes it will achieve. You can also read an edited extract from the book on our blog, here.
Looking back on where this book really started, I would have to say that it was 10 years in the making. It was about 10 years ago that my son Aaron was diagnosed with Autism, and I was launched into a world of speech therapy, behavioural intervention, visual supports and questions – lots of questions.
I was already a registered Psychologist at the time, and had been working with children with Autism and other developmental disabilities in an early intervention program in Melbourne, Australia. While with hindsight I can honestly say that my experience of being a parent to a child with Autism has been a challenging but overwhelmingly positive one, I can still remember the moment I was told that Aaron had Autism and my reaction was one I have since seen many other parents go through – fear, sadness, and confusion.
New book Talking With Your Child About Their Autism Diagnosis is a guide to aid discussion and understanding between parents and children. In this blog, edited and adapted from Chapter 3 of the book, author Raelene Dundon breaks down the reasons why she recommends being open and honest with your child about autism.
Is it important to tell a child they have autism? Do they need to know? Will they figure it out for themselves? What does the future look like if they don’t know?
These are questions that parents of children with autism may ask themselves many times from the time their child receives their diagnosis, and the answer is not a straightforward one. Depending on who you talk to, there are different opinions on whether it is necessary to tell your child about their autism or not.
“I had no premonition, when my first grandchild was born, that I would be writing this book. How could I know that Ruben’s birth would lead me to question many of my essential ‘truths’ about being male or female? That his small fierce journey across the landscape of gender would take me on one of my own? That Ruben’s insistence on living his own truth would inspire me to live mine more fully? None of us knew then that my grandson, soon to be celebrated in every hue of blue, would undo our gender bearings. These were impossible circumstances to imagine the morning Ruben arrived. I simply held him to my heart and gazed into his face, as surely in-love as I’ve ever been in the whole of my life…” p.11, Becoming an Ally to the Gender-Expansive Child