Carlo Leget is Professor in Care Ethics and Endowed Professor of Spiritual and Ethical Questions in Palliative Care at the University of Humanistic Studies in Utrecht, Netherlands. His book Art of Living, Art of Dying is a contemporary guide for discussing end of life and existential questions. Here, he considers end of life issues in a hospice context and reflects on the importance of a model for enabling a ‘good death.’
Some twenty years ago I entered the world of patients who are dying and their families. Until that time I had been studying theology, trying to find the meaning of life in conversation with the great minds of Western thought. I wrote a PhD thesis on the relation between life on earth and ‘life’ after death in the theology of Thomas Aquinas, and hoped to continue my work by building a bridge between the ancient wisdom of the Church and problems in contemporary health care.
The higher one’s ambitions are, the more one risks to lose. During my participatory observation as an auxiliary nurse, caring for dying patients and their families, I virtually did not find a single point of connection between my ambitions and everyday reality. The people who were cared for and died in the nursing homes I worked in, were hardly thinking about life after death. Even ethical issues about autonomy, non-maleficence and benevolence I had read so much about and which might work as a point of departure did not seem to play any role at all.