New book Talking With Your Child About Their Autism Diagnosis is a guide to aid discussion and understanding between parents and children. In this blog, edited and adapted from Chapter 3 of the book, author Raelene Dundon breaks down the reasons why she recommends being open and honest with your child about autism.
Is it important to tell a child they have autism? Do they need to know? Will they figure it out for themselves? What does the future look like if they don’t know?
These are questions that parents of children with autism may ask themselves many times from the time their child receives their diagnosis, and the answer is not a straightforward one. Depending on who you talk to, there are different opinions on whether it is necessary to tell your child about their autism or not.
All children need help to bounce back from life’s challenges, but having autism can sometimes make this more difficult. Building resilience and independence in children with autism can be hugely beneficial in helping them live an independent and rewarding life. Dr Emma Goodall and Jeanette Purkis have written The Parents’ Practical Guide to Resilience for Children aged 2-10 on the Autism Spectrum to help parents, teachers and carers support and empower the young people in their lives.
Parents of autistic children can worry about their child’s future. Parents are often given a long list of the barriers to their autistic child’s potential, or even told that their child will not finish school, get a job or live the kind of life parents tend to want for their children. Whilst well supported autistic adults usually achieve a happy and fulfilled life, many autistic people can struggle to find their confidence and resilience to respond to every day events.
A Guide to Mental Health Issues in Girls and Young Women on the Autism Spectrum: Diagnosis, Intervention and Family Support is the first book to look specifically at how mental health issues relate to girls and young women with autism, covering theory, research and tailored interventions for support.
In this extract, taken from Chapter 6 on Anxiety and Depression, author Dr Judy Eaton explores the results of a number of studies into anxious behaviour in girls and young women on the autistic spectrum.
Evidence suggests that an estimated 40 per cent of individuals on the autism spectrum will suffer from high levels of anxiety (Van Steensel, Bögels and Perrin 2011). Clinical experience would suggest that this figure is likely to be higher, particularly amongst those with the pathological (or extreme) demand avoidance profile. In an earlier version of the DSM, DSM-III (APA 1980), ‘sudden excessive anxiety’ and ‘unexplained panic attacks’ were included amongst the core criteria for a diagnosis of autism. However, subsequent versions of the DSM (IV and V) do not include this. The reason for this is not entirely clear. Hallett et al. (2013) cite the meta-analysis by White et al. (2009) which found that between 11 per cent and 84 per cent of children with a diagnosis of autism display anxiety. Of the 31 studies analysed 30 per cent were diagnosed with specific phobias, 17 per cent had obsessive compulsive disorder, 17 per cent had social anxiety and 15 per cent reported features of ‘generalised’ anxiety. Their results suggested that children with autism were twice as likely to develop anxiety disorders compared with their neuro-typical peers. High levels of anxiety have a negative impact upon education, social relationships and social participation and on other members of the immediate family group (Reaven 2011). There is also an increased likelihood that these anxiety disorders will persist into adulthood.
Tom Alexander explains what motivated him to write My Secret Dog and outlines the book’s positive message in promoting kindness to animals.
It wasn’t supposed to be published. Honest it wasn’t. I was just trying to get my sister a birthday present…
My sister Lois has always wanted a dog, but she lives in central London and keeping a pet is not only impractical, it’s specifically forbidden by the terms of her tenancy. (To avoid confusion, I should mention here that Lois is my older sister.) From this, I had an idea to write a story about a little girl in a similar position who goes the extra step and tries to keep a dog hidden from her mum and her teachers. I wrote it in one sitting and even though I failed all my art classes in school, I knew it needed some illustrations to break up the text. After a few terrible, terrible attempts at drawing a dog, I came up with this:
It wouldn’t win any portraiture awards, but there was no denying it was a dog. More specifically, it felt like the dog. Once I had that, the rest of the illustrations followed. Before too long, I had a collection of pages with text and pictures that I printed out, stapled together and gave to my sister on her birthday. She liked it, so I breathed a sigh of relief, put My Secret Dog in a drawer and left it there. As far as I was concerned, the folded, photocopied sheets were as much of a book as it was ever going to be. Continue reading
Illustrator Emma Lindström talks us through how Robin and the White Rabbit came to be, and shares her process for creating the striking water colour and photo imagery that adorn the book.
Under a tree in the schoolyard, a lone child is sitting. They sit there looking at the others… all the while turning further and further away. The feelings are piling up around the child, but no one’s there to help the child reach through the wall of feelings that separates them from the other children. The child is told that they must play with the other children, that they should be involved in the world around them. But how do you do that? The only thing the child knows right now is that it is fairly safe to sit under the tree… But what if a white rabbit would show up? A soft and kind rabbit who you can hug and play with…
Hello, my name is Emma Lindström. I am a preschool teacher with several years of experience supporting children with special needs, now specialising in visual aid.
In the summer of 2015, I sat at a café with my new-found friend Åse. We met only a few days earlier, by chance at a picnic. Åse talked about her experiences with people in need of visual communication, and soon we started to discuss the importance of understanding the need for people to communicate in ways other than spoken language. I related to my experiences as a support teacher in preschool and Åse talked about the various projects she participated in and her experiences from Konstfack College of Arts. After a while we considered what it would be like to create a picture book that highlights visual communication. Continue reading
The number of children identified with autism has more than doubled over the last decade. School-based professionals are now asked to participate in the screening, assessment, and educational planning for children and youth on the spectrum more than at any other time in the recent past. Moreover, the call for greater use of evidence-based practice has increased demands that school personnel be prepared to recognize the presence of risk factors, engage in case finding, and be knowledgeable about “best practice” guidelines in assessment and intervention for autism spectrum disorder (ASD). Continue reading
As part of our back to school promotion, we’re giving away free copies of our Autism and Education catalogues until the end of the month to all UK school staff. Just email hello@JKP.com, stating your address and the catalogue which you’d like, and we’ll send it in the post to you that same day.
Our education resources offer valuable guidance on important school issues such as mental health, special educational needs, bullying and peer pressure, safeguarding, restorative justice, sex education, trauma and attachment, gender diversity and more.
The heartbreaking motivation that compelled Åse Brunnström to find a way to help carers communicate visually with hard to reach children.
One day in 2009 sparked the inspiration for Åse and led her to investigate the different ways in which visual communication could be approached to help hard to reach children, dedicating her time to creating a universally accessible resource for the professionals, teachers and parents who would need it. The result was Robin and the White Rabbit, illustrated by Emma Lindström, a vital tool that helps children express and understand their thoughts and feelings through the use of visual communication cards.
Our latest autism catalogue is now available to view online and if you would like to request a free print copy please e-mail firstname.lastname@example.org
This year’s catalogue has more books in it than ever before from fiction and picture books for children and young readers to life guides on negotiating employment, building relationships and more for adults. Parents will find practical books on coping with challenging behaviour while educators and professionals will find essential resources to use day to day when working with children and adults on the autism spectrum.
If you would like to read more articles like this and get the latest news and offers on our autism books, why not join our mailing list? We can send information by email or post as you prefer. You may also be interested in liking our Autism Facebook page.
Our education resources offer valuable guidance on important school issues such as mental health, special educational needs, autism, bullying and peer pressure, safeguarding, restorative justice, sex education, trauma and attachment, gender diversity and more.
If you would like to request a free print copy of the catalogue, please email hello@JKP.com.
If you would like to find out more about our Education books and receive the latest news and offers on them, why not join our mailing list? We can send information by email or post as you prefer. You can unsubscribe at any time. You may also be interested in liking our Special Educational, PSHE and Early Years Resources Facebook page.