How to develop positive thinking in young people with autism by using Social Stories ™

” What Einstein was to atomic theory, astronomy, and math,
Siobhan Timmins is to Social Stories™ “
Carol Gray (founder and creator of Social Stories™)

 

Using the highly effective Social Stories™ model, Developing Resilience in Young People with Autism using Social Stories™ is full of ideas for coping with negative experiences and helping young people with autism, who are particularly susceptible to setbacks. In the following extract Siobhan Timmins introduces how to build positive thinking and then presents two Social Stories™ from her book called
Beginning to think in a positive way and Learning to think in a positive way.

 

Click the link below to read the extract

 

READ THE EXTRACT 

 

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5 things about conversation that everyone on the autism spectrum should know


Starting a conversation and then maintaining one can be difficult for teenagers and young adults on the autism spectrum. In the following blog Paul Jordan, the author of  How to start, carry on and end conversations: Scripts for social situations for people on the autism spectrum offers up advice on making sense of everyday social situations and gives us 5 top tips on maintaining a good conversation with someone.

  • Maintain eye contact with the other person
    This is extremely important for successful conversations, especially with neurotypicals (people without autism). This is arguably because, their brains which are wired conventionally, tell them that you are giving them your attention when you are looking at them.  Continue reading

Take a peek at our 2017 autism catalogue

Our latest autism catalogue is now available to view online and if you would like to request a free print copy please e-mail hello@jkp.com

This year’s catalogue has more books in it than ever before from fiction and picture books for children and young readers to life guides on negotiating employment, building relationships and more for adults. Parents will find practical books on coping with challenging behaviour while educators and professionals will find essential resources to use day to day when working with children and adults on the autism spectrum.


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How to give an awesome assembly for autism awareness: a teaching resource

autism awarenessClick here for an exclusive extract from Creating Autism Champions

Follow Joy’s easy to follow guide which shows you how to run your own assembly, or lesson plan, to raise autism awareness for the whole school or a class. Complete with a complementary download of the slides, this extract from Joy Beaney’s new book Creating Autism Champions is just one of many resources that can be found in the book. Creating Autism Champions is easily adaptable and includes staff training, lesson plans, photocopiable worksheets and online presentations, this ready-to-use programme is perfect to help schools promote autism awareness and inclusion.

If you would like to read more articles like this and hear the latest news and offers on our autism books for schools, why not join our mailing list? We can send information by email or post as you prefer. You may also be interested in liking our Autism, Asperger’s and Related Conditions Facebook page.

Managing Anxiety and Depression on the Autism Spectrum

The dramatic increase in the prevalence of autism spectrum conditions among children and adolescents and the correspondingly large number of youth transitioning into adulthood has created an urgent need to address the mental health problems faced by many adults on the autism spectrum. Nearly a half million youth with autism will enter adulthood over the next decade and most will continue to require some level of support. In addition, there is a large and diverse group of adults whose autistic traits were not identified in childhood and have not received the appropriate interventions and services. Although autism symptoms may improve with age, co-occurring mental health issues may worsen in adolescence or adulthood. As a result, there are a sizable number of adults on the higher end of the spectrum who are now seeking help to deal with feelings of social isolation, interpersonal difficulties, anxiety, depressed mood, and coping problems. Unfortunately, mental health problems such as anxiety and depression and even the diagnosis of an autism spectrum condition itself often go unrecognized. Although the rate of co-occurring (co-morbid) mental health issues for adults on the spectrum is high, accessing services to address these symptoms is frequently difficult and the extent of the problem will only increase as more and more youth transition to adulthood.

Evidence is beginning to emerge for interventions addressing the mental health needs of this growing and under-served group of adults, including cognitive-behavioral therapy (CBT). CBT has direct applicability to adults on the autism spectrum who often have difficulty understanding, managing, and expressing emotions. It has been shown to be effective in changing the way a person thinks about and responds to feelings such as anxiety and depression. With CBT, the individual learns skills to modify thoughts and beliefs through a variety of strategies which improve interaction with others in helpful and appropriate ways, thereby promoting self-regulation and mental health. It is a goal oriented approach and primarily emphasizes here-and-now problems, regardless of one’s history, traits, or diagnosis. CBT also provides a more structured approach than other types of psychotherapy, relies less on insight and judgment than other models, and focuses on practical problem-solving. Moreover, because individuals learn self-help in treatment they are often able to maintain their improvement after therapy has been completed. Evidence-based CBT holds considerable promise as an effective intervention for improving the quality of life and psychological well-being of adults on the autism spectrum.

Despite the availability of effective psychological treatments for anxiety and depression, a substantial number of adults on the autism spectrum do not seek professional help. Common obstacles to mental health care access include limited availability and affordability of services, confidentiality issues, lack of insurance coverage, frequent delays and long waiting periods, and social stigma. Likewise, many service providers do not have the experience or expertise to work with individuals on the autism spectrum, particularly those with co-occurring mental health issues. Self-help interventions represent an increasingly popular alternative to therapist-delivered psychological therapies, offering the potential of increased access to cost-effective treatment for a range of different mental health issues. They provide an opportunity for the individual to gain some useful insights and begin to work through their problems with limited guidance from a therapist or mental health professional. Research has clearly shown that self-help strategies are effective, practical, and acceptable for many individuals in reducing mental health problems such as mild to moderate anxiety and depression, often alone or with other forms of treatment. Self-help interventions have the potential to play an important role in providing effective treatment to the large proportion of adults on the spectrum who are experiencing mental health issues.

While there is no shortage of books describing the debates and challenges related to the diagnosis and treatment of autism spectrum conditions, there is a need for a practical resource for adults on the spectrum that promotes self-understanding and directly teaches effective ways of coping with their emotional challenges. Overcoming Anxiety and Depression on the Autism Spectrum: A Self-Help Guide Using CBT presents strategies derived from cognitive-behavioral therapy (CBT), adapted specifically for adults on the higher end of the spectrum, to help them overcome anxiety and depression, and improve their psychological well-being. The author takes the best of CBT therapeutic methods to facilitate greater self-understanding, self-advocacy, and better decision-making in life-span activities such as employment and interpersonal relationships. This self-help guide provides evidence-based tools that can be used to learn new ways of thinking, feeling, and doing. It includes questionnaires, worksheets, and exercises to help the reader:

  • Evaluate his or her autistic traits and discover their cognitive style.
  • Identify and modify the thoughts and beliefs that underlie and maintain the cycles of anxiety, depression, and anger.
  • Apply therapeutic techniques such as mindfulness, positive self-talk, guided imagery, and problem solving.
  • Accept the past and achieve unconditional self-acceptance.
  • Deal effectively with perfectionism and low frustration tolerance.
  • Avoid procrastination and learn to maintain positive changes to their progress

Used alone or in combination with therapy, Overcoming Anxiety and Depression on the Autism Spectrum: A Self-Help Guide Using CBT is an essential self-help book for adults on the higher end of the spectrum looking for ways to understand and cope with their emotional challenges and improve their psychological well-being. It was honored as an Award-Winning Finalist in the “Psychology/Mental Health” category of the 2016 Best Book Awards.

About the Author

Lee A. Wilkinson, PhD, is a licensed and nationally certified school psychologist, chartered psychologist, and certified cognitive-behavioral therapist. Dr. Wilkinson is author of the award-winning book, A Best Practice Guide to Assessment and Intervention for Autism Spectrum Disorder in Schools (2nd Edition), also published by Jessica Kingsley Publishers and editor of a best-selling text in the American Psychological Association (APA) Applying Psychology in the Schools Series, Autism Spectrum Disorder in Children and Adolescents: Evidence-Based Assessment and Intervention in Schools.

Strategies in Supporting Children with Special Needs around Death and Dying

“My grandma isn’t a dinosaur. Why are the dinosaurs in this book teaching about death?”

“My dad’s not a leaf. I don’t understand what falling leaves have to do with him dying.”

“My aunt died. Why is everyone saying she’s in a better place?”

Metaphors, symbolic language, euphemisms. These all present challenges for many children with special needs who process information in a concrete manner. The quotes above encapsulate some of the feedback we have heard during our work in hospice care and in special education, as parents describe their struggle with explaining death and dying to their children. We wrote I Have a Question about Death: A Book for Children with Autism Spectrum Disorder or Other Special Needs to address these challenges, and to create a book that parents and caregivers can read with all children.

Complicated subjects like death and dying can be particularly daunting to discuss with children, and even more so when those children have special learning needs; there is often no easy answer to difficult questions. The following strategies provide guidance on supporting a child with special needs around death and dying. Remember, every child processes information in a unique manner; consider which approach will work best for the children in your life based on strategies that have been successful in other scenarios. For instance, consider if the child learns best through visual cues, or through repetition. Do he/she process information best in short spurts? Does he/she have auditory processing or sensory-based challenges? Most of all, remember that special education is just good education! These strategies can work for all children.

  1. Straight Talk:

Though one might be tempted to “soften” the topic with “gentle” language, it can be more helpful to use the actual words, like “death” or “died” when talking with a child. Use concrete language and avoid euphemisms. Phrases like, “they are in a better place” or “they have passed” can lead to more confusion and anxiety.

  1. Preparation:

Consider using a short picture story, or checklist, to help provide a framework for next steps, especially if preparing them to attend a funeral or memorial service. Pictures, repetition, and perhaps even doing a “practice drive” to the funeral home, church or synagogue can help the child understand what to expect. Have a trusted adult on hand to be with the child if they need a break during the service.

  1. Emotions:

Many children with special needs have difficulty reading the emotional cues of other people. Preparing them for emotions they and others might experience can be helpful. Let them know some people may be sad and crying, and it’s ok if they feel the same way. Preparing for the emotional aspects of the experience with pictures or images, such as those provided by Symbol Stix (www.n2y.com), can be particularly useful.

  1. Sensory Processing:

After someone dies, disruptions in routines are common. Many more people may be in the child’s home, and there are likely new sounds, more hugs, and other changes that can challenge a child’s sense of order. Consider what sensory-based strategies have been helpful for the child in the past, and utilize those during this experience. Perhaps the child might need to take a break in a quiet room, hold a comforting toy, crash into a pile of pillows, or swing outside.

  1. Remembrance:

Support the child in remembering the person who died in meaningful and accessible ways. Ideas include creating a memory box filled with pictures or other mementos; helping to make connections for the child as to the impact of this person on their lives (i.e. if riding a train together, remembering a trip they took in the past with the person who died); or creating a short picture story about the person and their death, and ways they remember him/her.

  1. A New Normal:

When possible, try to maintain routines, as they are likely comforting to the child. However, do expect the possibility of regression, as the child may turn to self-soothing behaviors or show traits of an earlier developmental phase. Lean on your existing team of supporters, including teachers, school counselors, therapists, and friends.

  1. Communication:

If the child can communicate verbally, through assisted communication devices or in other ways, continue to encourage questions, even if the questions have no easy answer. We received much feedback about this issue when researching our book, as parents shared how difficult it had been to support a child around the questions that do not have a clear answer (“Why does someone die?” and “What happens to someone after they die?”). Continue to keep the lines of communication open, and acknowledge the frustration around not having a concrete answer to difficult questions.

Death and dying brings up myriad emotions for each of us, which certainly affects how we help our children cope. Keep in mind that you are already an expert when it comes to your child.  Relying on previously established strategies and support systems will go a long way in helping your child process this change in a healthy and developmentally appropriate way. This will lay the foundation for coping with other unexpected events and challenges throughout his/her life.

Arlen Grad Gaines, LCSW-C, ACHP-SW is a licensed clinical social worker with an advanced certification in hospice and palliative care based in Bethesda, Maryland. She is co-author of I Have a Question about Death: A Book for Children with Autism Spectrum Disorder or Other Special Needs (Jessica Kingsley Publishers).

Meredith Englander Polsky, MSW, MS Special Education, founded Matan (www.matankids.org) in 2000, and has helped improve Jewish education for thousands of children with special needs. She co-authored  I Have a Question about Death: A Book for Children with Autism Spectrum Disorder or Other Special Needs (Jessica Kingsley Publishers).

Please visit their website at www.ihaveaquestionbook.com for more information.

My child has autism and has started smearing… what can I do?

 

In this blog Kate Reynolds, the author of What to do About Smearing, addresses the issue of smearing and what parents and carers of children with autism can do when they are confronted with this type of behaviour.    Continue reading

How important is empathy within our care system?

Frightened

Bo Hejlskov Elvén is a Clinical Psychologist, and author of Frightened, Disturbed, Dangerous?, Disruptive, Stubborn, Out of Control?, Confused, Angry, Anxious? and Sulky, Rowdy, Rude?, based in Sweden. He is an independent consultant and lecturer on autism and challenging behaviour, and an accredited Studio III trainer. In 2009, he was awarded the Puzzle Piece of the Year prize by the Swedish Autism Society for his lecturing and counselling on challenging behaviour. 

Frightened, Disturbed, Dangerous? Those words are often used to describe people in psychiatric care. Historically, schizophrenia is one of our oldest diagnoses still in use. Our oldest diagnoses describe people whose behaviour was unpredictable and clearly different than that of other people. Today, we still see descriptions of people with psychiatric conditions described as disturbed and dangerous despite all the knowledge we have contradicting those descriptions. The words we use to describe people affect the way we think about them and our methods for working with them. If we believe that a person is dangerous, we will keep our distance and even react faster to the person’s behaviour. We are also more prone to react with force.

Continue reading

Tony Attwood on autism – how our understanding and approach has developed over the last 30 years

To mark JKP’s 30th anniversary year Tony Attwood has written about JKP’s role in developing the world’s understanding of and approach to autism. In this article he also touches upon his own experiences as a clinical psychologist/author, and what he thinks will be the key areas of discovery in the future.  Continue reading

Emotions of Suicide Loss

Reaching out to fellow Aspies, Lisa Morgan proffers her insight and advice to ensure that others on the autism spectrum don’t have to face suicide loss alone. Her book, Living Through Suicide Loss with an Autistic Spectrum Disorder (ASD): An Insider Guide for Individuals, Family, Friends, and Professional Responders is an honest look at the immediate aftermath of suicide loss, how emergency responders can help, and the long-term implications of living with suicide loss for individuals on the autism spectrum.

“A suicide loss can elicit such intense emotions that a person with Asperger’s Syndrome (AS) can be quickly overwhelmed and flooded with out of control feelings.  The complicated grief, possible trauma, and relationship difficulties are some of the reasons for the emotional flooding a person with AS might experience.  I have experienced emotional flooding many times since my husband completed suicide in 2015.  I am going to share with you the coping skills that worked for me as I continue to understand and gain control over my troublesome emotions.”

  • Complicated Grief

“Complicated grief is grief that is coupled with anger, rejection, and feelings of guilt to name a few. Anger is the lion of my emotions. It’s wild, ferocious, and can maul my heart before I even know what is happening. I have learned to let it out slowly in small, manageable bits.  There are different ways this can be done. The easy way is to recognize when you are feeling angry and go with it while still maintaining control. Hit a pillow, punch the couch, or the mattress on the bed until you are spent and have no energy left. Go for a brisk walk or a run. For me, the coping skill is to do something physical. I have found emotions caused by rejection and feelings of guilt can be reasoned away somewhat by logic. Accepting that the decision to complete suicide was not up to you, but was responsibility of the person who died by suicide is the first logical step. I worked at accepting my husband’s decision and releasing myself from feeling any rejection and guilt.  There were uncomfortable emotions I had to sort out, but the comfortable logic of reason helped very much. It doesn’t happen overnight. Healing from complicated grief is a process that will take time. It’s an investment in a future of hope, happiness, and health.”

  • Possible Trauma

“There is possible trauma involved in losing a loved one to suicide. There are people who witness the suicide, find their loved one after the suicide, or who reach their loved one in time to try to save them, only to have their loved one still not make it. The trauma added to the complicated grief can bring out confusing emotions and flood an adult with AS. When I experience emotional flooding I shut down. My senses are extremely hyper-sensitive. I can’t control my anxiety which leads to lots of crying, and all I want to do is to withdraw inside of myself. When my emotions flood, I try to reach out to someone who can ground me and help me to regain control. It’s usually very helpful to have someone repeat truths until I can feel that my emotions are calming down. If I can’t find someone to reach out to, I can stay emotionally flooded for a long time. Instead, I try to draw, write, listen to music, take walks, and use the coping skills I know have worked before until I feel better. It can be difficult to actually start using the coping skills, but with determination it can be done.   One thing that I have learned with all the emotional flooding I’ve experienced is it will dissipate eventually. The more coping skills I use, the faster I have felt better.”

  • Relationship Difficulties

“I have yet to completely understand how some relationships disintegrate for the survivor of suicide loss at a time when those relationships are needed more than ever before. It’s a painful absence for sure. I had friends tell me they would stay with me no matter what I was going through and then- leave soon after the worst experience of my life. As an adult with AS, trust is extremely important, yet dreadfully hard to do because of my early school years where I learned to not trust anyone. The reason I can still trust after some relationships died with my husband, is because I still have some friends that were true to their word and stayed with me the whole time even until now. The emotions of losing the relationships I did—were painful, confusing, and left a big hole of emptiness in me.  The pain that comes with relational loss is deep. I thought those friends would be my friends for life. Acceptance is the key to coping with lost relationships. Remembering that the friends who left decided to go and there’s nothing I could do about it. Is it difficult to accept? Yes! Is it impossible to accept? No.”

“Nothing that has happened since the loss of my husband to suicide has been easy. Knowing that the aftermath of suicide loss is terribly hard has helped me to take up the challenge to succeed, to thrive, and to move forward. I’m worth it, you’re worth it, and we all matter.”

To learn more about Lisa Morgan’s book or to purchase a copy, click here.

Living Through Suicide Loss is a valuable addition to suicide grief literature. Morgan’s account of the challenges she faced, following her husband’s death, will resonate deeply with all suicide loss survivors.  The special challenges she documented as someone with Asperger’s syndrome, will sensitize and empower all involved in such tragedies.”

—Ronnie Susan Walker MS, LCPC, Founder: Alliance of Hope for Suicide Loss Survivors

“The excellent and much-needed book deals with the specific issues—emotional and practical—faced by people on the autism spectrum when a loved one completes suicide. Written from a personal, lived experience perspective, this sensitive and valuable book validates the experience of readers and helps them to manage what is essentially unmanageable.

—Jeanette Purks, autism self-advocate and author of
The Guide to Good Mental Health on the Autism Spectrum