Alzheimer

A Journey Together

Federica Caracciolo

Francesco Caracciolo was a successful architect and, with his wife Federica, also worked as photo reporter for the UN, travelling extensively throughout Africa and Asia. A diagnosis of Alzheimer's put an end to their travels. With thoughtfulness and honesty, Federica shares her experience of caring for her husband during his battle with Alzheimers. more »

Keywords: Alzheimer's disease, dementia, families, health care, memoirs, social care

At Home in the Land of Oz

Autism, My Sister, and Me
2nd edition

Anne Clinard Barnhill

Anne's sister Becky was born in 1958, before most people had even heard of autism. Diagnosed with "emotional disturbance," Becky was subjected to well-meaning but futile efforts at "rehabilitation" or "cure," as well as prolonged spells in institutions. This bittersweet memoir will resonate with everyone interested in autism spectrum conditions. more »

Keywords: Asperger syndrome, autism, families, memoirs, parenting

Autism Heroes

Portraits of Families Meeting the Challenge

Barbara Firestone, Ph.D.
Photographs by Joe Buissink

This book provides a compelling account of the experiences of 38 families from different walks of life confronting the challenges of autism with courage, tenacity and love. Each narrative is set against the backdrop of Firestone's insightful essays which are fundamentally important to all families living with autism. more »

Keywords: Asperger syndrome, autism, children, families, memoirs, parenting

Eating an Artichoke

A Mother's Perspective on Asperger Syndrome

Echo R. Fling

For five years, Echo Fling accompanied her son Jimmy to doctors, medical specialists, learning consultants and psychologists. Aged ten, Jimmy was diagnosed with Asperger Syndrome. This is the book that Echo needed when she first set out to have Jimmy diagnosed, and it will enable parents and teachers to understand and help other children with AS. more »

Keywords: Asperger syndrome, children, families, memoirs, parenting

Elijah's Cup

A Family's Journey into the Community and Culture of High-functioning Autism and Asperger's Syndrome (Revised edition)

Valerie Paradiž

This book is both an exploration of the history of autism spectrum disorders and a powerful story of the author's own struggle with her son Elijah's Asperger's Syndrome.Her inspiring narrative offers compelling insights into daily life with Elijah's Asperger's syndrome and her own 'shadow syndrome', which affects many family members of autistics. more »

Keywords: advocacy, Asperger syndrome, children, families, high functioning autism, memoirs, parenting

Families of Adults with Autism

Stories and Advice for the Next Generation

Edited by Jane Johnson and Anne Van Rensselaer

The book is a collection of real-life stories of people on the autism spectrum growing up, as told by their families. Accounts explore the challenges that families of people with autism have faced, and the techniques they have used to improve the quality of their children's lives, from vitamins and dietary changes to intensive interaction. more »

Keywords: adults, Asperger syndrome, autism, counselling, disability, employment, families, health care, memoirs, occupational therapy, parenting, supported living

Karina Has Down Syndrome

One Family's Account of the Early Years with a Child who has Special Needs

Cheryl Rogers and Gun Dolva

Since their initial shock at their daughter's disability, Karina's parents have experienced the challenges and joys of raising a child with special needs. This is the account of Karina's first six years, as told to Cheryl Rogers. It is a valuable resource for the families of Down Syndrome children, teachers and disability service workers. more »

Keywords: Down's syndrome, families, intellectual disabilities, memoirs, parenting

Laughter and Tears

A Family's Journey to Understanding the Autism Spectrum

Ann Hewetson

Ann Hewetson's moving and thoughtful account describes her son Mark's communication problems, sensory integration and food allergies, shared by many people with autism, but also tells of Mark's associated problems like rheumatoid arthritis and bipolar mood swings. more »

Keywords: autism, families, memoirs, parenting

Learning to Live with Huntington's Disease

One Family's Story

Sandy Sulaiman

Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. more »

Keywords: counselling, families, health care, memoirs, palliative care

My Son Fred - Living with Autism

How Could You Manage? I Couldn't. I Did It Anyway

Maud Deckmar
Translated by Ewa Wulkan

Maud Deckmar tells a touching and honest story of living with Fred, her eldest child, who has autism and an intellectual disability. She recounts here the great struggles and sorrows as well as the love and happiness she has experienced from his early childhood to adulthood. more »

Keywords: autism, children, families, intellectual disabilities, memoirs, parenting, residential care, supported living

No Matter What

An Adoptive Family's Story of Hope, Love and Healing

Sally Donovan

No Matter What is the uplifting true story of an ordinary couple's journey from a diagnosis of infertility to their decision to adopt two children who suffered abuse in their early life. By turns heart-rending, inspiring and hilarious, Sally and Rob's story offers a rare insight into the world of adoptive parents. more »

Keywords: adoption, children, counselling, families, infertility, memoirs, parenting, social work

Relative Grief

Parents and children, sisters and brothers, husbands, wives and partners, grandparents and grandchildren talk about their experience of death and grieving

Clare Jenkins and Judy Merry

In this collection of accounts, people share their experiences of losing loved ones through death from natural causes, genetic conditions, accident, suicide and murder. Looking at death from different perspectives, it encourages people to understand their own grief and how those around to them might be affected by what can seem a very private loss. more »

Keywords: bereavement, counselling, families, grief, memoirs, palliative care

Running with Walker

A Memoir

Robert Hughes

Walker's father, Robert Hughes, tells a touching and inspiring story of discovering that their 'perfect little boy had a problem'. With disarming honesty and humour, the book tells how a family copes and keeps hope alive despite the staggering difficulties autism presents. more »

Keywords: autism, families, memoirs, parenting

Snapshots of Autism

A Family Album

Jennifer Overton

Jennifer Overton uses the key calendar events in the year to discuss the roller coaster of emotions that accompany life with her autistic son Nicholas. This book is a powerful account of what it is like to mother an autistic child, which puts a human face to autism amid all the overwhelming myths and facts that surround it. more »

Keywords: autism, children, families, memoirs, parenting

That's Life with Autism

Tales and Tips for Families with Autism

Edited by Donna Satterlee Ross and Kelly Ann Jolly

This book is full of advice and inspiration, written by parents for other parents and professionals caring for children on the autism spectrum. Chapter topics range from the effect of autism in the family on couple or sibling relationships and intervention options to educational issues, diet, and the role of friends and relatives. more »

Keywords: Asperger syndrome, autism, children, families, memoirs, parenting

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